Publicity

They had an interview on breakfast TV this morning on the theme of stroke. Of course, my ears pricked up.

They had a survivor on. In some ways, a very good example of a survivor, because she’d had her stroke at just 22. A lot younger than many people think is possible. Actually, even a baby could have a stroke, although it is also true that the probability increases with age.

They did at least mention that stroke was the biggest cause of disability in the UK, although I thought they could have made it a little more obvious by interviewing a disabled stroke survivor. Maybe a pretty young woman is considered better tv than somebody who’s chair-bound (especially over breakfast!)? Nothing against this woman – I’m sure she’s struggling to get her life back, however the stroke’s left her. But tv producers think in terms of viewers.

The (first part of the) fatal mistake, in my opinion, was when the interviewer asked, quite innocently, something along the lines: “I suppose it took you a long time to recover?” This was completed when the survivor didn’t correct him. Past tense, just like a cold, or a bout of chickenpox. I think probably all survivors – all the survivors I’ve met, at least –  would describe themselves as “recovering” at best. Present tense. I know a guy who had his stroke in the nineties and who still feels the effects. It never goes away – I think the biggest “win”, if you could have such a thing, is to get to the point where other people don’t notice the effects. I’m met several people like this too, I’ve probably seen many more without even realising, and I’m in awe. But it’ll always be obvious to the survivor that they had a stroke.

I will readily admit to feeling very alone at the start of the stroke, something which made me reach out and find other people. I’ve written about that in the past, it was certainly one of the reasons for volunteering. I’ve kind-of come full-circle now – I feel alone again because although I know there are people out there, those who speak out never quite hit the mark. I’ve seen how the benefits system leaves people with benefits at such a level as to be meaningless – make no mistake, if you have a stroke, the system just casts you off, to sink or swim on your own. I’ve seen how the medical system abandons people for the simple want of transport to get to an appointment.

You eally want to show what it’s like? Get a survivor on, ask them to write their name. Ask them to butter a piece of bread, to cut up a steak. Ask ’em to type something without making stupid bloody typos.

Author: Stroke Survivor UK

Designed and developed IT systems for banks, but had a stroke in 2016, aged 48. Returned to developing from home, and have since released a couple of apps. I split my time between this and voluntary work. I am married, with a grown-up, left-home child.

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